Epilepsy affects young people and their families, in ways that cannot be treated with medication alone. This is especially true for those who go through a long haul, before an accurate diagnosis is made and for those who live with uncontrolled seizures for many years.
The psychosocial impact of living with epilepsy often goes unacknowledged. The young person and his or her family are often left to grapple with the emotional turmoil and social consequences of this serious disorder on their own. They usually plow through the lack of information, idiosyncrasies of the medical and social support systems and the overwhelming nature of the seizure disorder, without much assistance. They may end up blaming themselves or become critical of “the systems” they have to deal with, which may compound their distress and aggravate their problems. Epilepsy does not affect each individual or family in a homogenous way. Every individual and their family are affected in their own unique way.
Excerpt from: The Psychosocial Impact of Epilepsy on Young People and Their Families, by Gurmeet Singh, Ph. D, R. Psych.
Getting connected and understanding you are not alone makes it easier as you navigate your way through living with epilepsy. Take your time as you read through more of Dr. Gurmeet Singh’s article and connect with office staff who are here to help.