Education & Awareness
Epilepsy Roadmap
Your guide from diagnosis to support in BC.
Receiving an epilepsy diagnosis can feel like a lot, especially when you are not sure what comes next. The Epilepsy Roadmap is a clear, step-by-step guide that explains the typical journey, the professionals involved, and the kinds of decisions and supports that often come up along the way.
Epilepsy Roadmap (Click to Zoom)
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What the Roadmap Steps Mean
Every person’s journey is different, but many people move through similar stages. Use this as a guide to help you feel more prepared and know what to ask at each point.
1) Recognizing seizure concerns
You may notice episodes such as staring, confusion, jerking, loss of awareness, unusual sensations, or unexplained falls.
If possible, write down what happened, when it happened, and how long it lasted.
2) Appointment and testing
A family doctor, nurse practitioner, urgent care, or emergency department may start the process.
Testing may include an EEG, MRI/CT, blood work, and a review of medical history and witnessed descriptions.
3) Diagnosis and understanding seizure type
If epilepsy is diagnosed, your provider may explain seizure type, possible triggers, and safety planning.
This is a good time to ask about school/work supports and what to do if another seizure happens.
4) Treatment and follow-up
Many people start with anti-seizure medication and regular follow-up appointments.
Tracking seizures, sleep, triggers, and side effects can help guide treatment decisions.
5) Safety planning and seizure first aid
Safety planning helps reduce risk at home, school, work, and in the community.
It’s also important that friends, family, and staff know seizure first aid and when to call 911.
6) Ongoing support and living well
Living with epilepsy can affect education, employment, independence, and wellbeing.
Support and reliable education can make a big difference over time.